Note:

When DICOM data are downloaded with the NBIA Data Retriever, the app uses “Series Description” values to construct descriptive directory names. In some series for this Collection, characters that are not allowed in directory names are present. So the workaround is to select the “Classic Directory Name” option, which is located above “Select Directory For Downloaded Files.”

GDC Data Portal – Clinical and Genomic Data

• The GDC Data Portal has extensive clinical and genomic data, which can be matched to the patient identifiers on the images here in TCIA. Below is a snapshot of clinical data available for the cases with imaging on the TCIA (extracted on 1/5/2016):
  • TCGA-OV Clinical Data.zip

  Case report forms (with verbose explanations) used to collect the clinical data can be found on the Biospecimen Core Resource Clinical Data Forms linked below:

  • Ovary Case Quality Control Form
  • Ovary Enrollment Form
  • Ovary Follow-Up Form

  Additional Documentation

  • OV Clinical Follow Up
  • OV Clinical Follow up Notes

  Cases by Site:

  • OV TCIA Cases – listed by site
  • OV TCIA Cases – listed by source site code

Shared List:  Ovarian Cases with Early Post-Operative Scans

This shared list is tor researchers wanting to evaluate the completeness  of OV tumor surgical de-bulking, this group of cases has sequential CT scans that have both pre-op (baseline) and early post-op (less than ~ 2 months).

A Note about TCIA and TCGA Subject Identifiers and Dates

Subject Identifiers: a subject with radiology images stored in TCIA is identified with a Patient ID that is identical to the Patient ID of the same subject with demographic, clinical, pathological, and/or genomic data stored in TCGA. For each TCGA case, the baseline TCGA imaging studies found on TCIA are pre-surgical.

Dates: TCIA and TCGA handle dates differently, and there are no immediate plans to reconcile:

• TCIA Dates: dates (be they birth dates, imaging study dates, etc.) in the Digital Imaging and Communications in Medicine (DICOM) headers of TCIA radiology images have been offset by a random number of days. The offset is a number of days between 3 and 10 years prior to the real date that is consistent for each TCIA image-submitting site and collection, but that varies among sites and among collections from the same site. Thus, the number of days between a subject’s longitudinal imaging studies are accurately preserved when more than one study has been archived while still meeting HIPAA requirements.
• TCGA Dates: the patient demographic and clinical event dates are all the number of days from the index date, which is the actual date of pathologic diagnosis. So all the dates in the data are relative negative or positive integers, except for the “days_to_pathologic_diagnosis” value, which is 0 – the index date. The years of birth and diagnosis are maintained in the distributed clinical data file. The NCI retains a copy of the data with complete dates, but those data are not made available.With regard to other TCGA dates, if a date comes from a HIPAA “covered entity’s” medical record, it is turned into the relative day count from the index date. Dates like the date TCGA received the specimen or when the TCGA case report form was filled out are not such covered dates, and they will appear as real dates (month, day, and year).

Publications by the Dataset Authors

The authors recommended the following as the best source of additional information about this dataset:

No other publications were recommended by dataset authors.

Research Community Publications

TCIA maintains a list of publications that leveraged this dataset. If you have a manuscript you’d like to add please contact TCIA’s Helpdesk.

Version 3: Updated 2020/04/03

On 2020-04-03 DICOM tags associated with TCGA-30-1891 were updated with a corrected version of the file.

Version 2: Updated 2016/01/05

Extracted latest release of clinical data (TXT) from the GDC Data Portal.

Version 1: Updated 2014/11/05